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Family Support:

It is also critical that PKU families share their experiences with each other. Therefore, it is our goal to offer networking opportunities including annual summer and winter get-togethers, as well as e-mail links in order to facilitate sharing and caring.



The mission of the Iowa PKU Foundation is to help Iowan PKU families to secure adequate nutritional, educational, and emotional support to enhance their lives.


Our ultimate goal is to find a cure for PKU


Formula and food coverage are the first priorities of the Iowa PKU Foundation. Through legislative action with our collaborative efforts, we will fight for PKU families to secure the necessary funding for their formula and low-protein food. Understanding the dietary nuances for PKU families is imperative for a balanced life.

Meet Iowa PKU'ers!

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